Depression Recovery

Question:

For the hair loss try getting your doctor to prescribe Folic acid, not the kind you get off the shelf but the real thing.  It will help.  Also I took Prozac for the depression while on the Pred.  It really helped and I didn’t gain a lot of weight.  My face was still puffy though.  Good luck to you.

Response:

Pitypup, Wow…thanks…i didn’t know that would help.  And yes…i take Prozac…just got it refilled.  Can anyone tell me why the damn gray ones won’t fall out…just my lovely brown ones..*LOL*  The weight gain i need…so that wouldnt be a problem. The acne is driving me nuts though.  I am back to the dr tomorrow…since they stepped me down on the Pred…I feel awful even though it didnt seem to be helping…it must have been helping some.  I am down to 30mg a day and you can see the bulg on my right side…it undulates when I eat…drink ect.  It is truly disconcerting….i guess you can see it because I am so thin…it is about the size of a golf ball…and you can feel it…inflammation or blockage or stricture?  My vision is also going to hell on the pred…I have blurry vision all the time now….thanks for the info on the folic acid…will check into that tomorrow… hugs Robin – Hide quoted text — Show quoted text – > For the hair loss try getting your doctor to prescribe Folic acid, not the kind > you get off the shelf but the real thing.  It will help.  Also I took Prozac > for the depression while on the Pred.  It really helped and I didn’t gain a lot > of weight.  My face was still puffy though.  Good luck to you.

Response:

welcome back robin! You know what they say "Hair today.  Gone tomorrow!"  (sorry for the bad pun) Hair does grow back.  You will feel better.  Your boyfriend is a loser (arent all of us guys?)  Clinton is almost out of the White house.  The meds will work.  Sometimes it can take awhile before anything works.  Try and relax.  Take up a hobby that keeps your mind active– you would be amazed at how it takes your mind off of the problems of the day, which in turn make you feel a little better. Hope you get better soon! Andy

Response:

hi robin. i am posting for the first time here. i have had this crummy desease all mylife…diagnosed in the 23rd year…i am 38 now. i had an operation in 1995 and they got alot of my ilium out…i was so bad they thought i had an operation prior!  i found that after the hellish recovery time, wich i do not want to discuss, i was put back on pentasa…16 250mg caps per day. supposed to be the "lowest dose"..idiots! after all that bleeding and suffering, pentasa?? again?? i took it for 4 years without any support from my doc as i repeatedly told him i hated taking all that stuff evryday…hed make 50$ to say well, someday we will find a cure. yea…well i was bleeding alot(h)…you know…i dont wanna say it, and i felt it was because of the damn pentasa. i almost died from so much bleeding last x-mas.   so 2 months ago, i stopped taking the crap! no bleeding since. funny huh?        welp…i suffer from manic depression too, and i am on stuff for that that doesnt work either. my point? you know your own body, and if prednisone helps you, take it. but it tends to put you in remission and then it flings some bad side effects. being manic, you can imagine what i was like!!!  good luck, and if you dont mind, keep me posted on your progress.   north. – Hide quoted text — Show quoted text – > Well hi ya;ll > it has been awile since i posted or even read the group.  I came back in > tonight to check on everyone and to ask a few questions. Ok…first of > all…they finally put me on prednisone a month ago.  I am taking 40mg a > day and will start to taper tomorrow…i am also on 4800 mg of asacol. > I do not feel any better than i did when i started either of the > meds..in fact I am worse.  is 6 months  an exhorbitant amount of time to > get results from meds or your doctor?  I am also now losing my hair at a > rapid pace *crying about this as i speak* and i have the lovely acne as > well.  I have told the boyfriend to move out and really cant stand him > now but don’t know if the pred as just made that worse or if i really > cant stand him…hehe.  Since i was diagnosed I have gotten even less > help and support from my family than before , when I was the only one > who believed that I was really sick.  I have no insurance , can only > work part-time and barely that.  I really don’t know how much longer I > can go on. *sigh*  How long should it take for the pred to make me feel > better and how long is the normal time for meds to make you go into > remission.  Will I feel this way the rest of my life?  and if so…why > go on? (disclaimer) I am not suicidal….just down in the dumps… > sorry for the rant > Robin

Response:

Hi Robin, I sympathize with you….I am also on 40 mg prednisone and feel like I am on a roller coaster most of the time.. I am tapering off tho this week.. I know you will get to feeling better .  It just takes time…Try to be patient….although it is hard on pred.   My family is very supportive so I really hate to hear yours is not. But you have a family here that is supportive so let us help you…. )  I am on asacol also but the suppositories not the pills and only started them yesterday so dont have any facts on that medicine really.  Im also on Pentasa 16 caps. a day.  and some other meds too. Just want you to know we are all pulling for you and anytime you need to talk or let off steam just feel free to email me…. VJ —

– Hide quoted text — Show quoted text -> Well hi ya;ll > it has been awile since i posted or even read the group.  I came back in > tonight to check on everyone and to ask a few questions. Ok…first of > all…they finally put me on prednisone a month ago.  I am taking 40mg a > day and will start to taper tomorrow…i am also on 4800 mg of asacol. > I do not feel any better than i did when i started either of the > meds..in fact I am worse.  is 6 months  an exhorbitant amount of time to > get results from meds or your doctor?  I am also now losing my hair at a > rapid pace *crying about this as i speak* and i have the lovely acne as > well.  I have told the boyfriend to move out and really cant stand him > now but don’t know if the pred as just made that worse or if i really > cant stand him…hehe.  Since i was diagnosed I have gotten even less > help and support from my family than before , when I was the only one > who believed that I was really sick.  I have no insurance , can only > work part-time and barely that.  I really don’t know how much longer I > can go on. *sigh*  How long should it take for the pred to make me feel > better and how long is the normal time for meds to make you go into > remission.  Will I feel this way the rest of my life?  and if so…why > go on? (disclaimer) I am not suicidal….just down in the dumps… > sorry for the rant > Robin

Response:

Robin The Asacol may take a while to kick in, but in my experience the pred always kicked in right away.  Maybe a clear liquid diet, if you haven’t been doing that already, may help out a bit too. Sorry you are feeling so lousy and that your family is not being as supportive as you’d like.  i think that a lot of people don’t comprehend just how sick  we can get with IBD, but your family should know since they are there.  And I’m sure the pred mood swings are rearing their ugly head. Take care and if you don’t feel better soon, call the doc. Hugs Tracy

Response:

Well hi ya;ll it has been awile since i posted or even read the group.  I came back in tonight to check on everyone and to ask a few questions. Ok…first of all…they finally put me on prednisone a month ago.  I am taking 40mg a day and will start to taper tomorrow…i am also on 4800 mg of asacol. I do not feel any better than i did when i started either of the meds..in fact I am worse.  is 6 months  an exhorbitant amount of time to get results from meds or your doctor?  I am also now losing my hair at a rapid pace *crying about this as i speak* and i have the lovely acne as well.  I have told the boyfriend to move out and really cant stand him now but don’t know if the pred as just made that worse or if i really cant stand him…hehe.  Since i was diagnosed I have gotten even less help and support from my family than before , when I was the only one who believed that I was really sick.  I have no insurance , can only work part-time and barely that.  I really don’t know how much longer I can go on. *sigh*  How long should it take for the pred to make me feel better and how long is the normal time for meds to make you go into remission.  Will I feel this way the rest of my life?  and if so…why go on? (disclaimer) I am not suicidal….just down in the dumps… sorry for the rant Robin

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